What World Autism Day 2019 means to us…
I have often spoken about what it’s like to be a special needs parent. It’s by no means a walk in park. But at the same time it’s something you get used to and even start to enjoy and appreciate. And at the end of the day, what are you going to do? Your children are your children and they have to be loved and cared for. Days like World Autism Day 2019, always give us a chance to think about where we are, where we’ve come from and where we’re going.
- Where were we? Getting to a point of acceptance was hard at the beginning. This was aggravated by the lack of true inclusion at school. Or of viable alternatives to mainstream education. Luckily we were able to start homeschooling, which helped a lot in reaching a point of equilibrium.
- Where are we? I think we’re in a good place for now. We’ve found our flow as a family. And have gotten to know our kids really well. I think that days like World Autism Acceptance Day have made it easier for all of us. I don’t feel embarrassed to say that the kids are autistic in difficult situations outside of the house. And it means something to people now. The woman at the library has been much more understanding since I told her. And the staff at the movies quickly gave us a refund when Dominic wasn’t able to cope.
- Where to now? Obviously nobody knows what the future holds. And the world is a crazy, negative place at the moment. But in our tiny part of earth, I hope that we can continue to give our children what they need, on our own terms. And to hopefully get some proper institutional support and facilities…even if I have to establish something myself!
What does World Autism Day 2019 mean to you?